April Sintz was struggling against cannabis laws for her 7 year old kid who is suffering from epilepsy. She is one of thousands of revolting people who wants cannabis drugs to be legalised in the country.
She said that feeding a seven year old child with weed may raise eyebrows, but she very well understands that the cannabis extract CBD, which has meager side effects, could help her kid recover from the fatal disorder with almost 30 seizures per day. Her kid Issac has also damaged his kidney due to the current treatment.
Sintz who stays in South Jordan, Utah near Salt Lake City says that her kid got the first seizure when he was 6 months old and still they have not got any perfect medication that can commit to the wellbeing of her son; she thinks that cannabis oil can make a difference.
As per news flashed on June 17, a UK based drug maker named GW pharmaceuticals Plc produced a drug out of CBD that reduced seizures by 50 percent. The test was done over a period of 12 weeks upon 27 patients. Most of the patients fall under the age 10 and all have been facing failure with other treatments. Even such trials are being tested ahead.
As per the statement of Steve Schultz, vice president of GW Pharmaceuticals, about 300 children having epilepsy are registered for the upcoming trials.
Few days back after losing all hopes, Sintz joined a non-profit organization called “Hope for Children for Epilepsy” that organized educational vents and lobbies on the state authorities and that may be the reason for Utah being one of the 11 states to decriminalize the use of marijuana in the state. However, there are 23 other states where cannabis medicine is legalized but for other ailments like HIV/AIDS, glaucoma and cancer.
Distribution of registration cards have started last week at Utah’s health department. Sintz said that she is going to get a card for her kid so that she can avail legal treatment for her son.
Out of total 2 million epilepsy patients, about a quarter is children and as per a report from Disease Control and Prevention about 30 percent of the people are not responsive towards the current treatment.
As per blog post by Sintz, she has tried everything she can and is fed up of the US approved epilepsy medicine that has immense side affects like nausea, drowsiness, and have adverse effects on brain and kidney.
Since then, the Food and Drug Administration did a series of trials and audits over epilepsy diagnosis and expedited the review of medicines prescribed for the disease.
Alabama has put $1 million for clinical trial, whereas states like Utah, Missouri, and Florida would appoint neurologists to survey and gather information about patient’s reaction and handover to the state authorities.